Russell, his mother Linda, and his grandfather Eric have all been diagnosed with Charcot Marie Tooth disease in the past two years. Charcot Marie Tooth (CMT) Disease, also known as Hereditary Peripheral Neuropathy, is a genetic condition discovered by 3 doctors (Dr. Charcot, Dr. Marie and Dr. Tooth).
The diagnosis explains the neuropathy symptoms and gradual decline of the peripheral nerves these three generations experience. Russell and Linda both talk about their symptoms, frustrations and what the CNA has does for them.
Russell has taken on the role of Director, Community Engagement at the CNA, and Linda is the Vice President.