Self-advocacy is a space we would want to develop further. Many of us have difficulty knowing what is true, who we can trust, how we can best talk to doctors & make the most of our time with them. Even talking with our family and friends is challenging for some, as ‘regular’ people don’t understand and don’t have a point of reference. Our hope is in the future this section can better help neuropathy sufferers take charge of their care.
Please provide suggestions in the comments if you have ideas on how we can expand this resource..
To develop the Language of Nerve Pain we enlisted some of our CNA Connections (support meeting) group to have them describe what best described their neuropathy pain and to brainstorm on other fitting language.
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